"But that's not the way it's supposed to be!" is a common thing we say when our expectations fall short. It happens to all of us. Some members of MyLupusTeam have found the practice of "allowing and letting be" in the midst of a trying to be a way to minimize anxiety or heaviness.

Mindfulness experts suggest a few ways that we can notice -- not push away -- how we feel during difficult moments. There are physical responses we can notice (heaviness in the shoulders, tightness in the chest), and we should also take note of our emotional responses to disappointment (blame, self-doubt, exasperation). These can be opportunities to realign our expectations and extend grace to ourselves.

Here are recent conversations from MyLupusTeam:

• "Don't be afraid to as a question, just be prepared for numerous answers. No two cases of lupus are the same, but you might find that an answer that someone gives might help. Just remember you are not alone."
• "Fortunately, I have very compassionate family and friends that understand what I go through and they support me, I am still working I do battle through the day, always tired, and most nights don't sleep."
• "Today is a very blessed day indeed. Am I in physical pain, yes; does my body ache and feel weak, yes. Does my heart feel loved and blessed, YES! God has.held me close these past few weeks of my flare. And, the best thing He gave me was all of my lupus warriors here to keep me humble. I love you all and wish you a wonderful weekend."

Share how you respond when things fall short of your expectations in the comments below or directly on MyLupusTeam.com.