“The moment I received my official diagnosis, I dropped all my assumptions about lupus. It was so freeing.” — Member of MyLupusTeam

Living with a chronic condition can be difficult and even a burden, but also an opportunity to rid yourself of what you think you know.

Have you heard the saying, “People don’t get it until they get it”? That is so true about lupus.

“The more I learn about lupus, the more I realize that it’s not my fault.” — Member of MyLupusTeam

A lupus diagnosis forces us to drop our negative assumptions about life with a chronic condition. Members on MyLupusTeam gain perspective from other members’ experiences to become better informed about what it’s really like to live with lupus.

Here are recent conversations from members of MyLupusTeam:

• “Slowly starting to know my body and what to do and what not to do, etc. And I am still learning new things about myself.”
• “I’m feeling ok right now but having lupus, I’m learning my ok days are always subject to change. I miss feeling normal but this is now my new normal.”
• “It can be very scary when you first get the diagnosis. Just take a day at a time, read everything you can find on lupus and write down all your questions for your doctor. You will be able to find many answers here. You will always be able to share or vent without being judged.”

What negative assumptions have you let go of about lupus? Tell us about it in the comments below or directly on MyLupusTeam.com.