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MyLupusTeam is committed to sharing members’ experience with lupus back with the MyLupusTeam community. MyLupusTeam conducted a survey with 308 members diagnosed with lupus, including either systemic lupus erythematosus (SLE) or cutaneous forms of lupus (meaning lupus that affects skin). This survey asked about life with lupus, including their specific diagnoses and their symptoms. Here’s what members said:
Read more about common skin symptoms MyLupusTeam members have experienced.
What have been the worst symptoms that you experience? What do you find helps you the most?
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Can You Have SLE AND DISCORD LUPUS AT THE SAME TIME?
I Need To Lose Weight But Even When I Try To Get Out And Walk My Hips And Lower Back Kill Me For Days Afterwards To Feel Better! I Take Ibpr
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My fatigue and joint pain be so bad that I lay in bed and just can't function. Then other days I feel fine.
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