MyLupusTeam launched in August 2014 with just 10 members in the San Francisco Bay Area. Today, MyLupusTeam has grown to more than 127,000 members, making it the largest social network in the world for those living with lupus.
We believe that when you are diagnosed with lupus, getting perspective and connecting with others with lupus can help you better manage your life with the disease. Throughout the year we will share themes we see come up time and again on MyLupusTeam that we think will help you better control your lupus.
The infographic below represents what members of MyLupusTeam have experienced as the common triggers of lupus flares. All quotes have been anonymized.
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Restless Legs Syndrome
Are Saying That Even Malnutrition Can Cause A Flare-up? This Is Understandable. I Am Experiencing The " Downside Of The Volcano " Myself.
Glagballer
Does Anyone Know Of A Charitable Organization That Helps Lupus Patients With The Cost Of Dental Work? 30+ Years Of Sjogrens,lupus Steroidsš©
Does Anyone Feel That Benlysta Causes Them To Feel More Tired And Achy When They First Take It? I Had To Go Off If It As I Had COVID.
I Have Sciatic Nerve Pain. Doctors Arenāt Really Understanding How Bad It Really Is. I Am In Tears . I Have Pain Meds But They Donāt Help
How Long Does Subacute Cutaneous Symptoms Last? I Look Like A Leper With All Of The Sores. Living Like A Vampire In The Dark Isn't Healthy.
How Do I Know If It's A Flare Up Or Just My RA Or Both?
How Do I Know What Is Lupus And What Is Just Getting Older?
My Shortness Of Breath Seems To Be Worse In Winter
Can Lupus Sle Cause Cervical Cancer? And Cause Weight Loss?
I'm 68 Under Alot Of Stress And Brain Fogs
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A MyLupusTeam Member
My sister has cancerits,hard
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